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Lisa sounds like a wonderful, memorable woman. I'm sorry we've lost her and I'm sure she'll be missed and remembered for a long time.

Brian Walin


Great to see you blogging again! I was worried! It's been such a long time long since your last post! I hope you have been well!



Hi Susan. This is my first time posting. I happened to come across your YouTube video about the mastectomy camisole. Would you be willing to email me the brand name? My son's preschool teacher just discovered she has ILC and I would like to buy one for her. Thanks for sharing your experiences. Your videos are very informative.

Jennifer Eastman

Beautiful post. It's great to see a new post from you!


Hey Miss Susan..
It is marvelous to see you post again. You are a hero to one and all.
Darla *calendar girl*


I just found your blog via the article in the post about Twitter, Susan. This is quite off topic of Lisa, so first let me say I'm so sorry that another light has been dimmed.

This quote struck me from your post: "Meanwhile, busy playing serene Frozen Pea princess, distracting myself with outreach, stupidly sure that I had a handle on what was happening with my own cancer and generally not understanding diddly squat, I made Lisa one of my favorite "adoptees"."

Do you believe having gone through what you have, that it is exactly that distraction of outreach that kept you going and helped you through your experience? Would your own battle have been more/less difficult without the outside project you had going on? Just curious. I think it sounds like such a wonderful thing to be focused on that it makes me very interested to know if something like this can't do anything BUT help a person going through this journey?

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The Story Begins

About My Cancer

  • Invasive Lobular Carcinoma
    My form of breast cancer is less common than others. In fact only about 6 to 8% of cases of breast cancer are the invasive form that is based in the lobules, not in the milk ducts.

    Invasive, sometimes called Infiltrating, is a scary word. In most cases this form of breast cancer has been present for 8–10 years when detected by a mammogram or physical exam.

    In my case there was clearly an area that felt thickened or dense on December 6, 2007. A mammogram the next afternoon was not able to detect it but it clearly appeared on ultrasound and was confirmed by multiple biopsies the same day.

    During those 8 to 10 years the cancer took to become apparent to me, there has been plenty of opportunity for those invasive cells to get out of the breast and spread to the rest of the body.

    It is after all, by definition, an invasive form of cancer.

    Each year about 190 thousand women are diagnosed with invasive breast cancer in the US and about 40 thousand women will die of the disease. The larger the mass is when discovered the more risk. Mine had tentacled almost 5cm into the surrounding tissue and two other areas in the breast were discovered as well.

    My chances of living another 10 years without cancer in another area are about 40%. The likelihood of one of my other underlying health conditions doing the job before that is 20%. it took a few months to get used to that idea.

    Now though my attitude is that at least I know what I'm facing. It's just not what I expected. Life changes in an instant.

Funding Cancer Research

  • We Will Not Apeas Cancer

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